Facioscapulohumeral muscular dystrophy or FSHD is the most prevalent of the nine primary types of muscular dystrophy affecting adults and children.

FSHD Canada Foundation was founded by Neil Camarta and Craig Kelley, who both have FSHD and wanted to help fund research towards a cure.

According to the Foundation's website, the "singular goal of the FSHD Canada Foundation is to help find a cure - as soon as possible - for Canadians who suffer with FSHD."

Visit the FSHD Canada Foundation website.